TORONTO, May 30, 2024 (GLOBE NEWSWIRE) -- ALS Awareness Month kicks off June 1, as the ALS Society of Canada (ALS Canada) brings the community together to build recognition of what amyotrophic lateral sclerosis (ALS) is and the impact the relentless disease has on nearly 4,000 Canadians living with the disease and their families.
"An ALS diagnosis can be devastating. What we want people to know is – you are not alone,” says Tammy Moore, CEO, ALS Canada. “ALS Canada’s mission is to work with the ALS community to improve the lives of Canadians affected by ALS through advancing research, care, advocacy, and information. We realize that with each person diagnosed, there are roughly six additional people we touch within their circle of care. It’s important that we’re here, united together in our support. At ALS Canada, we do this by empowering people living with ALS to navigate the current realities of the disease, be informed consumers of ALS information, and advocate effectively for change. We also invest in high-quality research, that will fuel scientific discovery and hopefully lead to more approved therapies and improved quality of life.”
ALS is a neuromuscular disease that progressively paralyzes people because the brain can no longer communicate with the muscles of the body that we are typically able to move at will. As a result, people with ALS often face a swift decline in the ability to talk, walk, eat, swallow, and eventually breathe. There is currently no cure for the disease that carries a lifetime risk of 1 in 300 for each of us. In addition to advancing research, care, advocacy and information, ALS Canada provides community-based services, including direct support provided by the ALS Canada Equipment Program and ALS Canada Community Leads to Ontario families living with ALS.
This June, help us recognize ALS Awareness Month by getting involved with ALS Canada in a variety of ways:
About ALS and the ALS Society of Canada
Amyotrophic lateral sclerosis (ALS) is an unrelenting and currently terminal disease. It progressively paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe. Nearly 4,000 Canadians live with ALS and approximately 1,000 Canadians are diagnosed each year. Four out of five people living with ALS will die within two to five years of their diagnosis.
The ALS Society of Canada is working to change what it means to live with ALS. Grounded in and informed by the Canadian ALS community, we respond to the urgent unmet need for life-changing treatments by investing in high-quality research that will fuel scientific discovery and by engaging industry, supporting increased clinical capacity and advocating for equitable, affordable, and timely access to proven therapies.
Responding to the tremendous need for current and credible ALS knowledge, awareness and education, we empower Canadians affected by ALS to navigate the current realities of ALS, be informed consumers of ALS information, and advocate effectively for change. In Ontario, we provide direct community services to help people navigate ALS.
Founded in 1977, we are a registered charity that receives no core government funding – our work is powered by generous donors who share our vision of a future without ALS.
Join the conversation and connect with the ALS community online. Find ALS Canada on Twitter, Instagram, or like our page on Facebook.
For more information
ALS Society of Canada
media@als.ca
437-703-5402
