New York, NY, Feb. 16, 2023 (GLOBE NEWSWIRE) -- The Muscular Dystrophy Association (MDA) today announced the five organizations receiving $109,065 in grant funding. The grants will promote and support MDA’s key public policy and advocacy initiatives in coordination with awardees to empower people living with neuromuscular diseases to live longer, more independent lives. In the spirit of MDA's commitment to collaboration, the organization is utilizing this grant program to facilitate impactful and cooperative advocacy projects and initiatives. Grantees in this innovative model are: All Wheels Up, Cure CMD, Cure Rare Disease, OPMD Association, Tufts University Medical Center (Dr. James Chambers and team), for the following projects:
“With these grants, the Muscular Dystrophy Association is thrilled to contribute to innovative policy and advocacy initiatives at our partnering organizations that will hopefully lead to better treatments, care, and accessibility for the neuromuscular disease community. As a convener and leader for over 70 years in support of the neuromuscular community, MDA’s Advocacy Collaboration Grants program aims to facilitate impactful and cooperative advocacy projects and initiatives, since no individual organization can solve for every challenge or remove every barrier faced by individuals and families across the neuromuscular community,” said Paul Melmeyer, Vice President, Public Policy and Advocacy, MDA.
Applications for the program were announced in 2022 for MDA to collaborate with organizations focused on non-partisan, non-political advocacy initiatives to achieve legislative and public policy victories for the neuromuscular community at the federal, state, local level.
Criteria for grants included:
- Vital research projects to provide much-needed data to further understand the experiences of the neuromuscular disease community to further advocacy priorities
- Opportunities to convene stakeholders in the neuromuscular disease community through in-person and virtual meetings, conferences, and other events
- Programs or toolkits to build, grow, and train grassroots advocates from the neuromuscular disease community
- Other innovative programs, campaigns, or initiatives that can measurably impact one or more of MDA and the collaborating organizations' common advocacy goals
About Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives. To learn more visit mda.org and follow MDA on Instagram, Facebook, Twitter, TikTok, and LinkedIn.
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