Possible rare-disease fund brings hope

Mr Kenneth Mah and his wife Patricia with their children Chloe and Cayden. Nine-year-old Chloe has Pompe disease, which currently has no cure and can be fatal. Her treatment now easily reaches $40,000 a month.
Mr Kenneth Mah and his wife Patricia with their children Chloe and Cayden. Nine-year-old Chloe has Pompe disease, which currently has no cure and can be fatal. Her treatment now easily reaches $40,000 a month.ST PHOTO: BENJAMIN SEETOR
Published
30 min ago

Caregivers, doctors laud support for kids with such conditions but call for scope to be wider