IPSWICH, Mass. (WHDH) — An Ipswich middle-schooler and her classmates came close to their $1 million goal to hopefully find a cure for her neurological disease.
Talia Duff has CMT4J, a rare genetic disease similar to ALS. Her parents created the Cure CMT4J Organzation to fund gene therapy treatment, which could lead to a cure.
Talia joined her classmates and teachers last month in making a video about the fundraising, hoping it would go viral and raise money. While they did not hit their goal by New Year’s Eve, they still raised nearly $974,000.
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